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May 25, 2005
The results of Alex's chromosome tests are back
Talked with the doctor, this morning, and the most recent series of tests that they ordered all came back normal. The doctor said that there is a margin of error, so it's not 100% certain that 22q13 isn't what's going on, with Alex, but she also said that, at this point in time, science is rather limited, in it's knowledge of chromosomes, and all the various abnormalities that could occur. She also said that new info is being released, all the time, and now that Alex is in the geneticist's database, if anything comes back with criteria that matches him, we'll be the first to know.
So, it's good news, and bad news, all wrapped up into one big ball. This is also going to make it much tougher to get accepted for SSI. The doc I talked to thinks that if we let them know that Alex is one of their clients, that it should go smoothly, but I don't know. We have an appointment, for a telephone interview, next tuesday morning - so keep all of your fingers and toes crossed for us, ok?
Between this stuff, the girls coming, various crap with the ex, and some financial woes, to boot, I really feel like I'm at the bottom of the barrel. It's been a really, really, tough week.
Posted by Romy at May 25, 2005 04:05 PM
Comments
i'm sorry this week sucks so much. :(
see? sad face. you need pie. and distraction. later, i will sign on to chat and freak out about something to distract you. ooops! already did that yesterday. ok, i will come up with something else.
Posted by: Jodi ![[TypeKey Profile Page]](http://www.uberbrain.com/lizardlounge/nav-commenters.gif)
at May 25, 2005 04:46 PM
i'm so sorry, marie! it must be so frustrating to not have a concrete diagnosis and a concrete plan of action. hang in there... you're a tougher cookie than most.
Posted by: arifa at May 30, 2005 07:53 PM